Glossary

data-sharing
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data-harmonization
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data-integration
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collaboration
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data-sharing initiative
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Corresponds with the term “harmonization initiative” in Fortier et al. (2017).

catalogue
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Bergeron et al. (2018), Bergeron et al. (2021)

References

Bergeron, Julie, Dany Doiron, Yannick Marcon, Vincent Ferretti, and Isabel Fortier. 2018. “Fostering Population-Based Cohort Data Discovery: The Maelstrom Research Cataloguing Toolkit.” PLOS ONE 13 (7): e0200926. https://doi.org/10.1371/journal.pone.0200926.

Bergeron, Julie, Rachel Massicotte, Stephanie Atkinson, Alan Bocking, William Fraser, Isabel Fortier, and the ReACH member cohorts’ principal investigators. 2021. “Cohort Profile: Research Advancement Through Cohort Cataloguing and Harmonization (ReACH).” International Journal of Epidemiology 50 (2): 396–97. https://doi.org/10.1093/ije/dyaa207.

Fortier, Isabel, Parminder Raina, Edwin R Van den Heuvel, Lauren E Griffith, Camille Craig, Matilda Saliba, Dany Doiron, et al. 2017. “Maelstrom Research Guidelines for Rigorous Retrospective Data Harmonization.” International Journal of Epidemiology 46 (1): 103–5. https://doi.org/10.1093/ije/dyw075.